SANFILIPPO RESEARCH FOUNDATION INC

Address
225 OAKLAND STREET
WELLESLEY, MA 02481
Contact
Website: http://www.bensdream.org
Phone: +1 (617) 899-4158
Nonprofit
NTEE: H12 - Fund Raising and/or Fund Distribution
EIN: 04-3565765

Mission

TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE.
 20162015201420132012
Basic features of the organization
Year of formation2001
Subsection code03
PF filing required0    
Metropolitan statistical area1123
Form of organization
CorporationTrue
Human resources, including compensation
Summary compensation info
Sum of reportable (W2/1099) compensation    $0.00
Number of employees    0
Number of people compensated >$100k    0
Number of volunteers    0
Personnel
Bokhour, Edward
TitleADVISORADVISORADVISORADVISORADVISOR
Name of key/compensated personEDWARD BOKHOUR PHDEDWARD BOKHOUR PHDEDWARD BOKHOUR PHDEDWARD BOKHOUR PHDEDWARD BOKHOUR PHD
Position of compensated person
Current individual trustee or director    True
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    1.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Carpenter, Howard
TitleSecretarySecretarySecretarySecretarySECRETARY
Name of key/compensated personHOWARD CARPENTER JRHOWARD CARPENTER JRHOWARD CARPENTER JRHOWARD CARPENTER JRHOWARD CARPENTER JR
Position of compensated person
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    2.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Fitzgerald, Thomas
TitleADVISORADVISORADVISORADVISORADVISOR
Name of key/compensated personTHOMAS FITZGERALD MDTHOMAS FITZGERALD MDTHOMAS FITZGERALD MDTHOMAS FITZGERALD MDTHOMAS FITZGERALD MD
Position of compensated person
Current individual trustee or director    True
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    1.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Louis, David
TitleADVISORADVISORADVISORADVISORADVISOR
Name of key/compensated personDR DAVID LOUIS MDDR DAVID LOUIS MDDR DAVID LOUIS MDDR DAVID LOUIS MDDR DAVID LOUIS MD
Position of compensated person
Current individual trustee or director    True
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    1.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Shelby, Sarah
TitleADVISORADVISORADVISORADVISORADVISOR
Name of key/compensated personSARAH SHELBY PHDSARAH SHELBY PHDSARAH SHELBY PHDSARAH SHELBY PHDSARAH SHELBY PHD
Position of compensated person
Current individual trustee or director    True
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    1.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Siedman, Jennifer
TitlePresidentPresidentPresidentPresidentPRESIDENT
Name of key/compensated personJENNIFER SIEDMANJENNIFER SIEDMANJENNIFER SIEDMANJENNIFER SIEDMANJENNIFER SIEDMAN
Position of compensated person
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    5.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Siedman, Stuart
TitleVP/TREASURERVP/TREASURERVP/TREASURERVP/TREASURERVICE PRESIDENT/TREASURER
Name of key/compensated personSTUART SIEDMANSTUART SIEDMANSTUART SIEDMANSTUART SIEDMANSTUART SIEDMAN
Position of compensated person
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    5.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Zon, Leonard
TitleADVISORADVISORADVISORADVISORADVISOR
Name of key/compensated personLEONARD ZON PHDLEONARD ZON PHDLEONARD ZON PHDLEONARD ZON PHDLEONARD ZON PHD
Position of compensated person
Current individual trustee or director    True
Officer, director, trustee, or key employeeTrueTrueTrueTrue 
Average hours per week working for org    1.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Purpose: mission, activities, & accomplishments
Mission or significant activities    TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE.
Primary exempt purposeTO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE.TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE.TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE.TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME AND RAISE FUNDS TO SUPPORT RESEARCH AIMED AT FINDING A CURE. 
Program service expenses, total$101,745.00$1,679.00$2,897.00$222,921.00$3,310.00
Programs, including revenue & expenses
THE ORGANIZATION HELD VARIOUS ON-GOING FUNDRAISING ACTIVITIES THROUGHOUT THE YEAR AND ISSUED A FEW SMALL GRANTS.
Program expenses    $3,310.00
Grants and allocations made    $590.00
Program revenue    $77,787.00
Program description    THE ORGANIZATION HELD VARIOUS ON-GOING FUNDRAISING ACTIVITIES THROUGHOUT THE YEAR AND ISSUED A FEW SMALL GRANTS.
Financial data
Revenue
Total revenue$55,909.00$76,761.00$178,718.00$68,126.00$77,974.00
Revenue from contributions (total) $76,739.00$178,676.00$68,045.00$77,787.00
Investment income, current yr$28.00$22.00$42.00$81.00$187.00
Total revenue from grants, etc., current yr    $77,787.00
Total unrelated business revenue    $0.00
Other revenue, current yr    $0.00
Net unrelated business taxable revenue    $0.00
Program service revenue (total) $0.00$0.00$0.00$0.00
Gross receipts    $77,974.00
Sources of contributions
Revenue from fundraising events    $16,700.00
Revenue from all other contributions    $61,087.00
Other types of revenue
Income from dividends, interest, and similar investments    $187.00
Net rental income $0.00$0.00 $0.00
Net income from fundraising events    $0.00
Expense categories (totals)
Total functional expenses: sum of all    $7,058.00
Total functional expenses: program service     $3,310.00
Total functional expenses: management and general    $0.00
Total functional expenses: fundraising    $3,748.00
Fees for services
Fundraising service fees (total)    $0.00
Assets and liabilities
Total assets$250,408.00$296,244.00$249,930.00$76,241.00$232,286.00
Total assets, beginning of year$296,244.00$249,930.00$76,241.00$232,286.00$161,370.00
Total liabilities $0.00$0.00$0.00$0.00
Total liabilities, beginning of year    $0.00
Net assets$250,408.00$296,244.00$249,930.00$76,241.00$232,286.00
Net assets, beginning of year    $161,370.00
Cash: non-interest bearing    $232,286.00
Cash: non-interest bearing, beginning of year    $161,370.00
Other financial variables
Revenue less expenses    $70,916.00
Total net assets or fund balances    $232,286.00
Governance and accountability
Number of voting members    3
Number of independent voting members    1
Relationships among key personnel    True
Cash accountingTrueTrueTrueTrueTrue
Tax year start date2016-01-012015-01-012014-01-012013-01-012012-01-01
Tax year end date2016-12-012015-12-012014-12-012013-12-012012-12-01
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990EZ990EZ990EZ990EZ990
Date e-filing submitted2018-01-112017-02-142016-02-192014-12-092013-11-27
IRS schema version2016v3.02015v2.02014v5.02013v3.12012v2.1
Filing identifier201733199349201638201603279349200010201543209349200149201403299349200005201332269349302533
Use these data in your project Benchmark this organization against its peers