CHILDRENS FUND FOR GLYCOGEN STORAGE DISEASE RESEARCH INC

Address
20 SHERWOOD LANE
CHESHIRE, CT 06410
Contact
Website: http://www.curegsd.org
Phone: +1 (203) 272-7744
Nonprofit
NTEE: H70 - Digestive Disease, Disorder Research
EIN: 04-3638491

Mission

THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.
 20162015201420132012
Basic features of the organization
Subsection code03
PF filing required0    
Metropolitan statistical area5483
Form of organization
CorporationTrue
Human resources, including compensation
Summary compensation info
Number of employees00000
Number of volunteers20    
Personnel
Bonelli, Harriet
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personHARRIET BONELLIHARRIET BONELLIHARRIET BONELLIHARRIET BONELLIHARRIET BONELLI
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Feldman, David
TitleSECTRY/TREASSECTRY/TREASSECTRY/TREASSECTRY/TREASSECTRY/TREAS
Name of key/compensated personDAVID FELDMANDAVID FELDMANDAVID FELDMANDAVID FELDMANDAVID FELDMAN
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org5.005.00 10.0010.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Feldman, Wendy-Becker
TitlePRESIDENTPRESIDENTPRESIDENTPRESIDENTPRESIDENT
Name of key/compensated personWENDY-BECKER FELDMANWENDY-BECKER FELDMANWENDY-BECKER FELDMANWENDY-BECKER FELDMANWENDY-BECKER FELDMAN
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org5.005.00 10.0010.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Gussin, Meri
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personMERI GUSSINMERI GUSSINMERI GUSSINMERI GUSSINMERI GUSSIN
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Hodes, Lisa
TitleVICE PRESIDEVICE PRESIDEVICE PRESIDEVICE PRESIDEVICE PRESIDE
Name of key/compensated personLISA HODESLISA HODESLISA HODESLISA HODESLISA HODES
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org5.0010.00 20.0020.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Hodes, Sanford
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personSANFORD HODESSANFORD HODESSANFORD HODESSANFORD HODESSANFORD HODES
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Julius, Michael
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personMICHAEL JULIUSMICHAEL JULIUSMICHAEL JULIUSMICHAEL JULIUSMICHAEL JULIUS
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Reed, Fran
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personFRAN REEDFRAN REEDFRAN REEDFRAN REEDFRAN REED
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Reed, Teri
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personTERI REEDTERI REEDTERI REEDTERI REEDTERI REED
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Rosen, Valarie
TitleDIRECTORDIRECTORDIRECTORDIRECTORDIRECTOR
Name of key/compensated personVALARIE ROSENVALARIE ROSENVALARIE ROSENVALARIE ROSENVALARIE ROSEN
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Purpose: mission, activities, & accomplishments
Mission or significant activitiesTHE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.THE EXEMPT PURPOSE OF THE ORGANIZATION IS TO RAISE AND DISBURSE FUNDS TO SUPPORT INDIVIDUALS AND LABORATORIES AND OR CORPORATE ENTITIES WHO ARE INVOLVED IN ACTIVITIES THAT WILL AID IN THE DIAGNOSIS, TREATMENT AND EVENTUAL CURE OF GLYCOGEN STORAGE DISEASE TYPE 1A. ONE HUNDRED PERCENT OF THE ORGANIZATIONS TIME, MONETARY AND HUMAN RESOURCES ARE UTILIZED TOWARD THIS ACTIVITY.
Program service expenses, total$147,220.00$89,028.00$248,674.00$156,083.00$294,133.00
Programs, including revenue & expenses
THE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE MEDICAL RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.
Program expenses$147,220.00$89,028.00$248,674.00$156,083.00$294,133.00
Grants and allocations made$147,220.00$89,028.00$248,674.00$156,083.00$294,133.00
Program revenue $513,576.00   
Program descriptionTHE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE MEDICAL RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.THE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE MEDICAL RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.THE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE MEDICAL RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.THE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.THE CHARITABLE PURPOSE OF THE FOUNDATION IS TO SUPPORT, ENCOURAGE, AND ADVANCE RESEARCH REGARDING AND THE TREATMENT OF GLYCOGEN STORAGE DISEASE.
Financial data
Revenue
Total revenue$370,150.00$513,576.00$594,540.00$500,805.00$406,346.00
Revenue from contributions (total)$163,620.00$119,060.00$287,320.00$228,887.00$318,681.00
Revenue from noncash contributions$3,594.00$1,949.00$9,901.00 $2,112.00
Investment income, current yr$430.00$420.00$399.00$275.00$191.00
Total revenue from grants, etc., current yr$163,620.00$119,060.00$287,320.00$228,887.00$318,681.00
Total unrelated business revenue$0.00$0.00$0.00$0.00$0.00
Other revenue, current yr$206,100.00$394,096.00$306,821.00$271,643.00$87,474.00
Program service revenue (total) $0.00$0.00$0.00$0.00
Gross receipts$438,681.00$577,201.00$656,544.00$566,980.00$408,872.00
Sources of contributions
Revenue from fundraising events$96,106.00    
Revenue from all other contributions$67,514.00$119,060.00$287,320.00$228,887.00$318,681.00
Other types of revenue
Income from dividends, interest, and similar investments$430.00$420.00$399.00$275.00$191.00
Net rental income $0.00$0.00$0.00$0.00
Net income from fundraising events$206,100.00$394,096.00$306,821.00$271,643.00$87,474.00
Expense categories (totals)
Total functional expenses: sum of all$165,086.00$116,584.00$274,718.00$192,439.00$319,048.00
Total functional expenses: program service $147,220.00$89,028.00$248,674.00$156,083.00$294,133.00
Total functional expenses: management and general$17,521.00$18,890.00$22,870.00$24,756.00$9,412.00
Total functional expenses: fundraising$345.00$8,666.00$3,174.00$11,600.00$15,503.00
Fees for services
Fundraising service fees (total)$0.00$0.00$0.00$0.00$0.00
Assets and liabilities
Total assets$1,391,114.00$1,182,180.00$800,664.00$460,103.00$245,432.00
Total assets, beginning of year$1,182,180.00$800,664.00$460,103.00$245,432.00$174,506.00
Total liabilities$0.00$0.00$20,000.00$0.00$98,996.00
Total liabilities, beginning of year $20,000.00 $98,996.00$117,508.00
Unrestricted net assets, end of yr$1,391,114.00$1,182,180.00$780,664.00$460,103.00$146,436.00
Net assets$1,391,114.00$1,182,180.00$780,664.00$460,103.00$146,436.00
Net assets, beginning of year$1,182,180.00$780,664.00$460,103.00$146,436.00$56,998.00
Other assets  $4,375.00$14,289.00$2,145.00
Investments: publicly traded securities$43,412.00$35,580.00$28,755.00$17,733.00$12,189.00
Cash: non-interest bearing$1,347,702.00$1,146,600.00$767,534.00$428,081.00$231,098.00
Cash: non-interest bearing, beginning of year$1,146,600.00$767,534.00$428,081.00$231,098.00$166,713.00
Other financial variables
Revenue less expenses$205,064.00$396,992.00$319,822.00$308,366.00$87,298.00
Accounts payable & accrued expenses    $98,996.00
Deferred revenue  $20,000.00  
Total net assets or fund balances$1,391,114.00$1,182,180.00$780,664.00$460,103.00$146,436.00
Governance and accountability
Number of voting members1010101010
Number of independent voting members1010101010
Financial sheets audited TrueTrueTrueTrue
Relationships among key personnelTrueTrueTrueTrueTrue
Accrual accountingTrueTrueTrueTrueTrue
Tax year start date2016-01-012015-01-012014-01-012013-01-012012-01-01
Tax year end date2016-12-012015-12-012014-12-012013-12-012012-12-01
Indicators for schedules (selected)
Grants to domestic org/gov't >$5kTrueTrueTrueTrueTrue
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990990990990990
Reason for form submission
Address change True   
Date e-filing submitted2017-11-062016-12-202015-10-082014-09-302013-12-02
IRS schema version2016v3.02015v2.12014v5.02013v3.12012v2.1
Filing identifier201722519349301202201602259349300840201542649349300179201432349349300013201342219349301504
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