LGS FOUNDATION INC

Address
80 ORVILLE DRIVE SUITE 100
BOHEMIA, NY 11716
Contact
Website: http://www.lgsfoundation.org
Phone: +1 (718) 374-3800
Nonprofit
NTEE: G80 - Specifically Named Diseases
EIN: 26-2051377

Mission

THE LGS FOUNDATION IS DEDICATED TO IMPROVING THE LIVES OF INDIVIDUALS LIVING WITH LENNOX-GASTAUT SYNDROME, A RARE AND CATASTROPHIC FORM OF EPILEPSY, THROUGH RESEARCH, PROGRAMS AND EDUCATION.
 20162015201420132012
Basic features of the organization
Year of formation2008
Subsection code03
PF filing required0    
Metropolitan statistical area5602
Form of organization
CorporationTrue
Human resources, including compensation
Summary compensation info
Sum of reportable (W2/1099) compensation$68,660.00$62,550.00$55,272.00$52,640.00 
Number of employees0000 
Personnel
Arango, Kelly
TitleTREASURERTREASURERTREASURER  
Name of key/compensated personKELLY ARANGOKELLY ARANGOKELLY ARANGO  
Position of compensated person
Current officerTrueTrueTrue  
Average hours per week working for org3.003.003.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Bartenhagen, Mike
Title  BOARD MEMBERBOARD MEMBER 
Name of key/compensated person  MIKE BARTENHAGENMIKE BARTENHAGEN 
Position of compensated person
Current officer  TrueTrue 
Average hours per week working for org  3.003.00 
Reportable compensation from org  $0.00$0.00 
Other comp, non-reportable, from org and related orgs  $0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00$0.00 
Currier, John
TitleVICE-PRESIDEVICE-PRESIDEVICE-PRESIDEVICE-PRESIDE 
Name of key/compensated personJOHN CURRIER MBAJOHN CURRIER MBAJOHN CURRIER MBAJOHN CURRIER MBA 
Position of compensated person
Current officerTrueTrueTrueTrue 
Average hours per week working for org3.003.003.003.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Fox, Kara
Title  SECRETARY  
Name of key/compensated person  KARA FOX  
Position of compensated person
Current officer  True  
Average hours per week working for org  3.00  
Reportable compensation from org  $0.00  
Other comp, non-reportable, from org and related orgs  $0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00  
Gilmore, Natalie
TitleBOARD MEMBERBOARD MEMBER   
Name of key/compensated personNATALIE GILMORENATALIE GILMORE   
Position of compensated person
Current officerTrueTrue   
Average hours per week working for org3.003.00   
Reportable compensation from org$0.00$0.00   
Other comp, non-reportable, from org and related orgs$0.00$0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00   
Griffin, Jennifer
TitleSECRETARYSECRETARYBOARD MEMBER  
Name of key/compensated personJENNIFER GRIFFINJENNIFER GRIFFINJENNIFER GRIFFIN  
Position of compensated person
Current officerTrueTrueTrue  
Average hours per week working for org3.003.003.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Hartsook, Melinda
Title    TREASURER
Name of key/compensated person    MELINDA HARTSOOK
Reportable compensation from org    $0.00
Huntley, Melanie
TitlePRESIDENTPRESIDENTRESEARCH LIA  
Name of key/compensated personMELANIE HUNTLEY PHDMELANIE HUNTLEY PHDMELANIE HUNTLEY PHD  
Position of compensated person
Current officerTrueTrueTrue  
Average hours per week working for org3.003.003.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Krause, Kari
Title    SECRETARY
Name of key/compensated person    KARI KRAUSE
Reportable compensation from org    $0.00
Mitchell, Christopher
TitleBOARD MEMBERBOARD MEMBER   
Name of key/compensated personCHRISTOPHER MITCHELL JDCHRISTOPHER MITCHELL JD   
Position of compensated person
Current officerTrueTrue   
Average hours per week working for org3.003.00   
Reportable compensation from org$0.00$0.00   
Other comp, non-reportable, from org and related orgs$0.00$0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00   
Mph, Danielle
Title  RESEARCH LIA  
Name of key/compensated person  DANIELLE BOYCE MPH  
Position of compensated person
Current officer  True  
Average hours per week working for org  3.00  
Reportable compensation from org  $0.00  
Other comp, non-reportable, from org and related orgs  $0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00  
Saninocencio, Christina
TitleBOARD MEMBERBOARD MEMBERPRESIDENTPRESIDENTPRESIDENT
Name of key/compensated personCHRISTINA SANINOCENCIOCHRISTINA SANINOCENCIOCHRISTINA SANINOCENCIOCHRISTINA SANINOCENCIOCHRISTINA SANINOCENCIO
Position of compensated person
Current officerTrueTrueTrueTrue 
Average hours per week working for org40.0040.0040.0030.00 
Reportable compensation from org$68,660.00$62,550.00$55,272.00$52,640.00$51,056.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Saninocencio, Kim
Title    VICE-PRESIDE
Name of key/compensated person    KIM SANINOCENCIO
Reportable compensation from org    $0.00
Todd, Dale
TitleBOARD MEMBERBOARD MEMBER   
Name of key/compensated personDALE TODDDALE TODD   
Position of compensated person
Current officerTrueTrue   
Average hours per week working for org3.003.00   
Reportable compensation from org$0.00$0.00   
Other comp, non-reportable, from org and related orgs$0.00$0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00   
Purpose: mission, activities, & accomplishments
Mission or significant activitiesTHE LGS FOUNDATION IS DEDICATED TO IMPROVING THE LIVES OF INDIVIDUALS LIVING WITH LENNOX-GASTAUT SYNDROME, A RARE AND CATASTROPHIC FORM OF EPILEPSY, THROUGH RESEARCH, PROGRAMS AND EDUCATION.THE LGS FOUNDATION IS DEDICATED TO IMPROVING THE LIVES OF INDIVIDUALS LIVING WITH LENNOX-GASTAUT SYNDROME, A RARE AND CATASTROPHIC FORM OF EPILEPSY, THROUGH RESEARCH, PROGRAMS AND EDUCATION.WE ARE DEDICATED TO PROVIDING INFORMATION ABOUT LENNOX-GASTAUT SYNDROME, A RARE AND SEVERE FORM OF CHILDHOOD-ONSET EPILEPSY, WHILE RAISING FUNDS FOR PROGRAMS AND SERVICES FOR LGS FAMILIES IN ADDITION TO RESEARCH IN THE EPILEPSIES.WE ARE DEDICATED TO PROVIDING INFORMATION ABOUT LENNOX-GASTAUT SYNDROME, A RARE AND SEVERE FORM OF CHILDHOOD-INSET EPILEPSY, WHILE RAISING FUNDS FOR PROGRAMS AND SERVICES FOR LGS FAMILIES IN ADDITION TO RESEARCH IN THE EPILEPSIES. 
Primary exempt purpose    WE ARE DEDICATED TO PROVIDING INFORMATION ABOUT LENNOX-GASTAUT SYNDROME, A RARE AND SEVERE FORM OF CHILDHOOD-INSET EPILEPSY, WHILE RAISING FUNDS FOR PROGRAMS AND SERVICES FOR LGS FAMILIES IN ADDITION TO RESEARCH IN THE EPILEPSIES.
Program service expenses, total$284,025.00$158,782.00$247,508.00$134,157.00$93,544.00
Programs, including revenue & expenses
TO PROVIDE INFORMATION ABOUT LENNOX-GASTAUT SYNDROME AS WELL AS PROGRAMS AND SERVICES FOR LGS FAMILIES.
Program expenses$284,025.00$158,782.00$247,508.00$134,157.00 
Grants and allocations made$55,000.00$55,000.00$53,703.00  
Program revenue$32,016.00$2,000.00   
Program descriptionTO PROVIDE INFORMATION ABOUT LENNOX-GASTAUT SYNDROME AS WELL AS PROGRAMS AND SERVICES FOR LGS FAMILIES.TO PROVIDE INFORMATION ABOUT LENNOX-GASTAUT SYNDROME AS WELL AS PROGRAMS AND SERVICES FOR LGS FAMILIES.TO PROVIDE INFORMATION ABOUT LENNOX-GASTAUT SYNDROME AS WELL AS PROGRAMS AND SERVICES FOR LGS FAMILIES.TO PROVIDE INFORMATION ABOUT LENNOX-GASTAUT SYNDROME AS WELL AS PROGRAMS AND SERVICES FOR LGS FAMILIES. 
Financial data
Revenue
Total revenue$336,556.00$214,368.00$292,077.00$245,752.00$89,368.00
Revenue from contributions (total)$278,906.00$199,621.00$266,901.00$160,062.00$27,721.00
Investment income, current yr$76.00$128.00$251.00$0.00 
Total revenue from grants, etc., current yr$278,906.00$199,621.00$266,901.00$160,062.00 
Total unrelated business revenue$0.00$0.00$0.00$0.00 
Other revenue, current yr$25,558.00$12,619.00$11,109.00$82,306.00 
Program service revenue (total)$32,016.00$2,000.00$13,816.00$3,384.00$35,223.00
Gross receipts$360,159.00$227,238.00$300,652.00$258,260.00 
Sources of contributions
Revenue from all other contributions$278,906.00$199,621.00$266,901.00$160,062.00 
Other types of revenue
Miscellaneous revenue (total)$16,000.00$5,000.00   
Income from dividends, interest, and similar investments$76.00$128.00$251.00  
Net rental income $0.00$0.00$0.00 
Net income from fundraising events$9,558.00$7,619.00$11,109.00$82,306.00 
Expense categories (totals)
Total functional expenses: sum of all$306,700.00$179,662.00$265,482.00$156,521.00 
Total functional expenses: program service $284,025.00$158,782.00$247,508.00$134,157.00 
Total functional expenses: management and general$22,675.00$20,880.00$17,974.00$22,364.00 
Total functional expenses: fundraising$0.00$0.00$0.00$0.00 
Fees for services
Legal fees (total)$100.00$715.00   
Fundraising service fees (total)$0.00$0.00$0.00$0.00 
General management fees (total)$84,511.00$66,456.00$62,827.00$55,334.00 
Assets and liabilities
Total assets$504,025.00$325,521.00$286,678.00$352,259.00$54,939.00
Total assets, beginning of year$325,521.00$286,678.00$352,259.00$54,939.00$57,210.00
Total liabilities$305,609.00$156,961.00$152,824.00$245,000.00$2,810.00
Total liabilities, beginning of year$156,961.00$152,824.00$245,000.00$2,810.00$905.00
Unrestricted net assets, end of yr$198,416.00$168,560.00$133,854.00$107,259.00 
Net assets$198,416.00$168,560.00$133,854.00$107,259.00$52,129.00
Net assets, beginning of year$168,560.00$133,854.00$107,259.00$52,129.00 
Other assets$1,058.00$1,058.00   
Cash: non-interest bearing$195,362.00$173,899.00$135,478.00$35,876.00 
Cash: non-interest bearing, beginning of year$173,899.00$135,478.00$35,876.00$34,345.00 
Other financial variables
Revenue less expenses$29,856.00$34,706.00$26,595.00$89,231.00 
Advertising (total)$2,651.00$102.00$783.00$555.00 
Savings & temp cash investment$300,222.00$150,146.00$150,017.00$265,000.00 
Accounts receivable, net$7,000.00  $50,000.00 
Prepaid expenses & deferred charges$383.00$418.00$1,183.00$1,383.00 
Accounts payable & accrued expenses$5,609.00$6,173.00$2,824.00  
Deferred revenue$300,000.00$150,788.00$150,000.00$245,000.00 
Total net assets or fund balances$198,416.00$168,560.00$133,854.00$107,259.00 
Governance and accountability
Number of voting members8886 
Number of independent voting members8880 
Accrual accountingTrueTrueTrueTrueTrue
Tax year start date2016-01-012015-01-012014-01-012013-01-012012-01-01
Tax year end date2016-12-012015-12-012014-12-012013-12-012012-12-01
Indicators for schedules (selected)
Grants to domestic org/gov't >$5kTrueTrueTrue  
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990990990990990EZ
Reason for form submission
Address change True   
Date e-filing submitted2018-01-102017-01-182015-08-062014-12-032013-07-19
IRS schema version2016v3.02015v2.12014v5.02013v3.12012v2.1
Filing identifier201703189349313715201622719349300522201531349349303843201433169349304733201321289349201477
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