Rocky Mountain Rett Association

Address
PO Box 1294
Morrison, CO 80465
Contact
Website: http://www.rmrett.org
Phone: +1 (720) 234-7673
Nonprofit
NTEE: G80 - Specifically Named Diseases
EIN: 26-4698552

Mission

RMRA is organized for the primary purpose of funding research for the development of treatments and cures for RETT Syndrome and related MECP2 disorders. We also promote other related activites that provide support and advocacy to area families.
 20162015201420132012
Basic features of the organization
Year of formation2009
Subsection code03
PF filing required0    
Metropolitan statistical area2082
Form of organization
CorporationTrue
Human resources, including compensation
Summary compensation info
Sum of reportable (W2/1099) compensation$0.00$0.00   
Number of employees00000
Number of people compensated >$100k00   
Number of volunteers405015035 
Number of highly compensated contractors00   
Personnel
Benke, Tim
TitleDirectorDirectorDIRECTORADVISORYDIRECTOR
Name of key/compensated personTim BenkeTim BenkeTIM BENKETIM BENKETIM BENKE
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.005.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Callahan, Pat
TitleDirectorDirectorDIRECTOR  
Name of key/compensated personPat CallahanPat CallahanPAT CALLAHAN  
Position of compensated person
Current individual trustee or directorTrueTrueTrue  
Average hours per week working for org2.002.001.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Fiana, Ramez
Title    DIRECTOR
Name of key/compensated person    RAMEZ FIANA
Position of compensated person
Current individual trustee or director    True
Average hours per week working for org    5.00
Reportable compensation from org    $0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Grzywa, Josie
Title    DIRECTOR
Name of key/compensated person    JOSIE GRZYWA
Position of compensated person
Current individual trustee or director    True
Average hours per week working for org    5.00
Reportable compensation from org    $0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Huisingh, Jeff
Title    DIRECTOR
Name of key/compensated person    JEFF HUISINGH
Position of compensated person
Current individual trustee or director    True
Average hours per week working for org    5.00
Reportable compensation from org    $0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Huisingh, Laurie
Title    DIRECTOR
Name of key/compensated person    LAURIE HUISINGH
Position of compensated person
Current individual trustee or director    True
Average hours per week working for org    5.00
Reportable compensation from org    $0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Katz, Terry
Title   DIRECTORDIRECTOR
Name of key/compensated person   TERRY KATZTERRY KATZ
Position of compensated person
Current individual trustee or director   TrueTrue
Average hours per week working for org   1.005.00
Reportable compensation from org   $0.00$0.00
Other comp, non-reportable, from org and related orgs   $0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs    $0.00$0.00
Lundmark, Andrew
Title    DIRECTOR
Name of key/compensated person    ANDREW LUNDMARK
Position of compensated person
Current individual trustee or director    True
Average hours per week working for org    5.00
Reportable compensation from org    $0.00
Other comp, non-reportable, from org and related orgs    $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs     $0.00
Magid, Corrine
TitlepresidentpresidentDIRECTOR  
Name of key/compensated personCorrine MagidCorrine MagidCORRINE MAGID  
Position of compensated person
Current individual trustee or directorTrueTrueTrue  
Average hours per week working for org4.004.001.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Moore, Tania
Title   SECRETARYSECRETARY
Name of key/compensated person   TANIA MOORETANIA MOORE
Position of compensated person
Current individual trustee or director   TrueTrue
Average hours per week working for org   3.0010.00
Reportable compensation from org   $0.00$0.00
Other comp, non-reportable, from org and related orgs   $0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs    $0.00$0.00
Moore, Tim
Title  PRESIDENTVICE PRESIDECHAIRMAN
Name of key/compensated person  TIM MOORETIM MOORETIM MOORE
Position of compensated person
Current individual trustee or director  TrueTrueTrue
Average hours per week working for org  3.003.0010.00
Reportable compensation from org  $0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs  $0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00$0.00$0.00
Penn, Kara
TitlesecretarysecretaryDIRECTOR  
Name of key/compensated personKara PennKara PennKARA PENN  
Position of compensated person
Current individual trustee or directorTrueTrueTrue  
Average hours per week working for org3.003.001.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Reynolds, Kathleen
TitledirectordirectorSECRETARYDIRECTORDIRECTOR
Name of key/compensated personKathleen ReynoldsKathleen ReynoldsKATHLEEN REYNOLDSKATHLEEN REYNOLDSKATHLEEN REYNOLDS
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.003.001.005.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Rose, Carrie
Title   DIRECTORDIRECTOR
Name of key/compensated person   CARRIE ROSECARRIE ROSE
Position of compensated person
Current individual trustee or director   TrueTrue
Average hours per week working for org   3.005.00
Reportable compensation from org   $0.00$0.00
Other comp, non-reportable, from org and related orgs   $0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs    $0.00$0.00
Rose-Matens, Carrie
TitleVP Family AffairVP Family AffairVICE PRESIDE  
Name of key/compensated personCarrie Rose-MatensCarrie Rose-MatensCARRIE ROSE-MATENS  
Position of compensated person
Current individual trustee or directorTrueTrueTrue  
Average hours per week working for org2.003.003.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Schaffner, John
TitleDirectorDirectorDIRECTORDIRECTORDIRECTOR
Name of key/compensated personJohn SchaffnerJohn SchaffnerJOHN SCHAFFNERJOHN SCHAFFNERJOHN SCHAFFNER
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.003.0010.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Shorma, Bob
TitleChairmanChairmanCHAIRMANPRESIDENTVICE CHAIRMA
Name of key/compensated personBob ShormaBob ShormaBOB SHORMABOB SHORMABOB SHORMA
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org2.002.003.004.0015.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Spiers, Celeste
TitleTreasurerTreasurerTREASURER  
Name of key/compensated personCeleste SpiersCeleste SpiersCELESTE SPIERS  
Position of compensated person
Current individual trustee or directorTrueTrueTrue  
Average hours per week working for org3.003.003.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Wertz, Chris
Title  DIRECTOR  
Name of key/compensated person  CHRIS WERTZ  
Position of compensated person
Current individual trustee or director  True  
Average hours per week working for org  1.00  
Reportable compensation from org  $0.00  
Other comp, non-reportable, from org and related orgs  $0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00  
Wilson, Sheila
Title   TREASURERTREASURER
Name of key/compensated person   SHEILA WILSONSHEILA WILSON
Position of compensated person
Current individual trustee or director   TrueTrue
Average hours per week working for org   5.0020.00
Reportable compensation from org   $0.00$0.00
Other comp, non-reportable, from org and related orgs   $0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs    $0.00$0.00
Purpose: mission, activities, & accomplishments
Mission or significant activitiesRMRA IS ORGANIZED FOR THE PRIMARY PURPOSE OF FUNDING RESEARCH FOR THEDEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2DISORDERS. WE ALSO PROMOTE OTHER RELATED ACTIVITES THAT PROVIDE SUPPORT AND ADVOCACY TO AREA FAMILIES.RMRA IS ORGANIZED FOR THE PRIMARY PURPOSE OF FUNDING RESEARCH FOR THEDEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2DISORDERS. WE ALSO PROMOTE OTHER RELATED ACTIVITES THAT PROVIDE SUPPORT ANDADVOCACY TO AREA FAMILIES.RMRA IS ORGANIZED FOR THE PRIMARY PURPOSE OF FUNDING RESEARCH FOR THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. WE ALSO PROMOTE OTHER RELATED ACTIVITES THAT PROVIDE SUPPORT AND ADVOCACY TO AREA FAMILIES.RMRA IS ORGANIZED FOR THE PRIMARY PURPOSE OF FUNDING RESEARCH FOR THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. WE ALSO PROMOTE OTHER RELATED ACTIVITES THAT PROVIDE SUPPORT AND ADVOCACY TO AREA FAMILIES.RMRA IS ORGANIZED FOR THE PRIMARY PURPOSE OF FUNDING RESEARCH FOR THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. WE ALSO PROMOTE OTHER RELATED ACTIVITES THAT PROVIDE SUPPORT AND ADVOCACY TO AREA FAMILIES.
Program service expenses, total$303,791.00$75,792.00 $116,995.00$116,195.00
Programs, including revenue & expenses
THE ORGANIZATION PROVIDES FUNDING TO THE TWO NATIONAL RETT SYNDROME GROUPS TO SUPPORT THEIR RETT SYNDROME RESEARCH AND SUPPORT
Program expenses   $81,950.00$80,000.00
Program description   THE ORGANIZATION PROVIDES FUNDING TO THE TWO NATIONAL RETT SYNDROME GROUPS TO SUPPORT THEIR RETT SYNDROME RESEARCH AND SUPPORTTHE ORGANIZATION PROVIDES FUNDING TO THE TWO NATIONAL RETT SYNDROME GROUPS TO SUPPORT THEIR RETT SYNDROME RESEARCH AND SUPPORT
The organization funds the RETT clinic at Children's Hospital Colorado and national groups to address the needs of families and to facilitate treatment and research.
Program expenses$303,791.00$75,792.00 $28,000.00$28,000.00
Program descriptionThe organization funds the RETT clinic at Children's Hospital Colorado and national groups to address the needs of families and to facilitate treatment and research.The organization funds the RETT clinic at Children's Hospital Colorado and national groups to address the needs of families and to facilitate treatment and research.THE ORGANIZATION FUNDS THE RETT CLINIC AT CHILDREN'S HOSPITAL COLORADO AND NATIONAL GROUPS TO ADDRESS THE NEEDS OF FAMILIES AND TO FACILITATE TREATMENT AND RESEARCH.THE ORGANIZATION HAS FUNDED THE ESTABLISHMENT OF A RETT CLINIC AT CHILDREN'S HOSPITAL COLORADO TO ADDRESS THE NEEDS OF FAMILIES AND TO FACILATATE TREATMENT AND RESEARCH.THE ORGANIZATION HAS FUNDED THE ESTABLISHMENT OF A RETT CLINIC AT CHILDREN'S HOSPITAL COLORADO TO ADDRESS THE NEEDS OF FAMILIES AND TO FACILATATE TREATMENT AND RESEARCH.
Financial data
Revenue
Total revenue$164,419.00$133,347.00$107,553.00$73,494.00$77,898.00
Revenue from contributions (total)$198,114.00$153,926.00$133,622.00$83,807.00$85,021.00
Revenue from noncash contributions   $2,666.00 
Investment income, current yr$0.00$0.00$564.00$0.00$0.00
Total revenue from grants, etc., current yr$198,114.00$153,926.00$133,622.00$83,807.00$85,021.00
Total unrelated business revenue$0.00$0.00$0.00$0.00$0.00
Other revenue, current yr-$33,695.00-$20,579.00-$26,633.00-$10,313.00-$7,123.00
Net unrelated business taxable revenue$0.00$0.00   
Program service revenue (total) $0.00$0.00$0.00$0.00
Gross receipts$198,114.00$153,926.00$134,186.00$83,807.00$85,021.00
Sources of contributions
Revenue from fundraising events$99,167.00$111,997.00$111,039.00$44,512.00$63,670.00
Revenue from all other contributions$98,947.00$41,929.00$22,583.00$39,295.00$21,351.00
Other types of revenue
Income from dividends, interest, and similar investments  $564.00  
Net rental income $0.00$0.00$0.00$0.00
Net income from fundraising events-$33,695.00-$20,579.00-$26,633.00-$10,313.00-$7,123.00
Expense categories (totals)
Total functional expenses: sum of all$324,269.00$82,421.00$10,717.00$120,915.00$120,990.00
Total functional expenses: program service $303,791.00$75,792.00$0.00$116,995.00$116,195.00
Total functional expenses: management and general$20,478.00$6,629.00$10,717.00$3,920.00$4,795.00
Total functional expenses: fundraising$0.00$0.00$0.00$0.00$0.00
Fees for services
Fundraising service fees (total)$0.00$0.00$0.00$0.00$0.00
Assets and liabilities
Total assets$120,142.00$279,678.00$228,752.00$160,523.00$207,944.00
Total assets, beginning of year$279,678.00$228,752.00$160,523.00$207,944.00$251,036.00
Total liabilities$314.00$0.00$0.00$0.00$0.00
Total liabilities, beginning of year$0.00$0.00   
Unrestricted net assets, end of yr$119,828.00$279,678.00$228,752.00$160,523.00$207,944.00
Net assets$119,828.00$279,678.00$228,752.00$160,523.00$207,944.00
Net assets, beginning of year$279,678.00$228,752.00$160,523.00$207,944.00$251,036.00
Other liabilities$0.00    
Other assets$80.00$250.00$1,120.00$5,585.00$25,405.00
Cash: non-interest bearing$118,343.00$270,898.00$165,153.00$77,806.00$76,136.00
Cash: non-interest bearing, beginning of year$270,898.00$165,153.00$77,806.00$76,136.00$73,676.00
Other financial variables
Revenue less expenses-$159,850.00$50,926.00$96,836.00-$47,421.00-$43,092.00
Savings & temp cash investment  $11,828.00  
Prepaid expenses & deferred charges $4,915.00$44,773.00$68,992.00$96,000.00
Accounts payable & accrued expenses$314.00    
Total net assets or fund balances$119,828.00$279,678.00$228,752.00$160,523.00$207,944.00
Depreciation, depletion, amortization$1,895.00$2,263.00$2,262.00$2,262.00$2,263.00
Governance and accountability
Number of voting members945915
Number of independent voting members945915
Relationships among key personnel   True 
Cash accountingTrueTrueTrueTrueTrue
Tax year start date2016-01-012015-01-012014-01-012013-01-012012-01-01
Tax year end date2016-12-012015-12-012014-12-012013-12-012012-12-01
Indicators for schedules (selected)
Grants to domestic org/gov't >$5kTrueTrue TrueTrue
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990990990990990
Reason for form submission
Address change  True  
Date e-filing submitted2018-01-172017-02-282015-09-142014-10-142013-09-30
IRS schema version2016v3.02015v2.12014v5.02013v3.12012v2.1
Filing identifier201723179349303192201633149349300843201502249349301400201421359349305072201342319349300714
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