THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC

Address
7202 E 87TH STREET NO 102
INDIANAPOLIS, IN 46256
Contact
Website: http://webin.alsa.org
Phone: +1 (317) 915-9888
Nonprofit
NTEE: G50 - Nerve, Muscle and Bone Diseases
EIN: 35-2029321

Mission

COMPASSIONATE CARE AND SUPPORT.
 20172016201520142013
Basic features of the organization
Year of formation1997
Metropolitan statistical area3480
Form of organization
CorporationTrue
Human resources, including compensation
Summary compensation info
Total compensation of current key personnel$43,517.00$81,373.00$72,252.00$67,223.00 
Sum of reportable (W2/1099) compensation$39,776.00$75,199.00$69,859.00$64,552.00 
Number of employees9798 
Number of people compensated >$100k0000 
Number of volunteers182182182305 
Number of highly compensated contractors0000 
Personnel
Annable, Celina
Title TRUSTEETRUSTEETRUSTEE 
Name of key/compensated person CELINA ANNABLECELINA ANNABLECELINA ANNABLE 
Position of compensated person
Current individual trustee or director TrueTrueTrue 
Average hours per week working for org 1.001.001.00 
Reportable compensation from org $0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs $0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs  $0.00$0.00$0.00 
Boege, Brett
TitleTRUSTEETRUSTEE   
Name of key/compensated personBRETT BOEGEBRETT BOEGE   
Position of compensated person
Current individual trustee or directorTrueTrue   
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00   
Other comp, non-reportable, from org and related orgs$0.00$0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00   
Chmielewski, Steven
Title PRESIDENTPRESIDENTPRESIDENT 
Name of key/compensated person STEVEN CHMIELEWSKISTEVEN CHMIELEWSKISTEVEN CHMIELEWSKI 
Position of compensated person
Current individual trustee or director TrueTrueTrue 
Average hours per week working for org 2.002.002.00 
Reportable compensation from org $0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs $0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs  $0.00$0.00$0.00 
Davis, Geoffrey
TitleTRUSTEETRUSTEETRUSTEETRUSTEE 
Name of key/compensated personGEOFFREY DAVISGEOFFREY DAVISGEOFFREY DAVISGEOFFREY DAVIS 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org1.001.001.001.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Dilworth, Christopher
Title  TRUSTEETRUSTEE 
Name of key/compensated person  CHRISTOPHER DILWORTHCHRISTOPHER DILWORTH 
Position of compensated person
Current individual trustee or director  TrueTrue 
Average hours per week working for org  1.001.00 
Reportable compensation from org  $0.00$0.00 
Other comp, non-reportable, from org and related orgs  $0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00$0.00 
Elson, Tim
Title   FORMER TRUSTEE 
Name of key/compensated person   TIM ELSON 
Position of compensated person
Current individual trustee or director   True 
Average hours per week working for org   1.00 
Reportable compensation from org   $0.00 
Other comp, non-reportable, from org and related orgs   $0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs    $0.00 
Euler, Mona
TitlePRESIDENTTRUSTEETRUSTEETRUSTEE 
Name of key/compensated personMONA EULERMONA EULERMONA EULERMONA EULER 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org2.001.001.001.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Feltman, Nate
TitleTRUSTEETRUSTEE   
Name of key/compensated personNATE FELTMANNATE FELTMAN   
Position of compensated person
Current individual trustee or directorTrueTrue   
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00   
Other comp, non-reportable, from org and related orgs$0.00$0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00   
French, Derek
TitleTREASURERTREASURERTREASURERTREASURER 
Name of key/compensated personDEREK FRENCHDEREK FRENCHDEREK FRENCHDEREK FRENCH 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org3.003.003.003.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Glaze, Brett
TitleTRUSTEE    
Name of key/compensated personBRETT GLAZE    
Position of compensated person
Current individual trustee or directorTrue    
Average hours per week working for org1.00    
Reportable compensation from org$0.00    
Other comp, non-reportable, from org and related orgs$0.00    
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00    
Helgeson, Sarah
Title  TRUSTEETRUSTEE 
Name of key/compensated person  SARAH HELGESONSARAH HELGESON 
Position of compensated person
Current individual trustee or director  TrueTrue 
Average hours per week working for org  1.001.00 
Reportable compensation from org  $0.00$0.00 
Other comp, non-reportable, from org and related orgs  $0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00$0.00 
Hutchinson, Leann
TitleTRUSTEETRUSTEE   
Name of key/compensated personLEANN HUTCHINSONLEANN HUTCHINSON   
Position of compensated person
Current individual trustee or directorTrueTrue   
Average hours per week working for org1.001.00   
Reportable compensation from org$0.00$0.00   
Other comp, non-reportable, from org and related orgs$0.00$0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00   
Kaetzel, Tina
TitleEXECUTIVE DIRECTOR    
Name of key/compensated personTINA KAETZEL    
Position of compensated person
Average hours per week working for org40.00    
Reportable compensation from org$0.00    
Other comp, non-reportable, from org and related orgs$0.00    
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00    
Loughmiller, Jarit
TitleTRUSTEE    
Name of key/compensated personJARIT LOUGHMILLER    
Position of compensated person
Current individual trustee or directorTrue    
Average hours per week working for org1.00    
Reportable compensation from org$0.00    
Other comp, non-reportable, from org and related orgs$0.00    
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00    
Mannella, Jeanne
Title VICE PRESIDENTVICE PRESIDENTVICE PRESIDENT 
Name of key/compensated person JEANNE MANNELLAJEANNE MANNELLAJEANNE MANNELLA 
Position of compensated person
Current individual trustee or director TrueTrueTrue 
Average hours per week working for org 2.002.002.00 
Reportable compensation from org $0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs $0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs  $0.00$0.00$0.00 
Millikan, Michael
TitlePAST PRESIDENTTRUSTEEPAST PRESIDENTPAST PRESIDENT 
Name of key/compensated personMICHAEL E MILLIKANMICHAEL E MILLIKANMICHAEL E MILLIKANMICHAEL E MILLIKAN 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org2.001.001.001.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Nicholson, Josh
TitleTRUSTEE    
Name of key/compensated personJOSH NICHOLSON    
Position of compensated person
Current individual trustee or directorTrue    
Average hours per week working for org1.00    
Reportable compensation from org$0.00    
Other comp, non-reportable, from org and related orgs$0.00    
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00    
Redden, David
Title TRUSTEE   
Name of key/compensated person DAVID REDDEN   
Position of compensated person
Current individual trustee or director True   
Average hours per week working for org 1.00   
Reportable compensation from org $0.00   
Other comp, non-reportable, from org and related orgs $0.00   
Corresponding comp from related orgs
Reportable compensation from related orgs  $0.00   
Shepard, Christy
TitleTRUSTEETRUSTEETRUSTEE  
Name of key/compensated personCHRISTY SHEPARDCHRISTY SHEPARDCHRISTY SHEPARD  
Position of compensated person
Current individual trustee or directorTrueTrueTrue  
Average hours per week working for org1.001.001.00  
Reportable compensation from org$0.00$0.00$0.00  
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00  
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00  
Sturges, Linda
Title  TRUSTEETRUSTEE 
Name of key/compensated person  LINDA STURGESLINDA STURGES 
Position of compensated person
Current individual trustee or director  TrueTrue 
Average hours per week working for org  1.001.00 
Reportable compensation from org  $0.00$0.00 
Other comp, non-reportable, from org and related orgs  $0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00$0.00 
Ternet, Adam
TitleSECRETARYSECRETARYSECRETARYSECRETARY 
Name of key/compensated personADAM TERNETADAM TERNETADAM TERNETADAM TERNET 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org2.002.002.002.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
White, Cheryl
Title TRUSTEETRUSTEETRUSTEE 
Name of key/compensated person CHERYL WHITECHERYL WHITECHERYL WHITE 
Position of compensated person
Current individual trustee or director TrueTrueTrue 
Average hours per week working for org 1.001.001.00 
Reportable compensation from org $0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs $0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs  $0.00$0.00$0.00 
Wilson, Andy
Title   FORMER TRUSTEE 
Name of key/compensated person   ANDY WILSON 
Position of compensated person
Current individual trustee or director   True 
Average hours per week working for org   1.00 
Reportable compensation from org   $0.00 
Other comp, non-reportable, from org and related orgs   $0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs    $0.00 
Wise, Cynthia
TitleFORMER EXECUTIVE DIRECTOREXECUTIVE DIRECTOREXECUTIVE DIRECTOREXECUTIVE DIRECTOR 
Name of key/compensated personCYNTHIA WISECYNTHIA WISECYNTHIA WISECYNTHIA WISE 
Position of compensated person
Average hours per week working for org40.0040.0040.0040.00 
Reportable compensation from org$39,776.00$75,199.00$69,859.00$64,552.00 
Other comp, non-reportable, from org and related orgs$3,426.00$5,874.00$2,393.00$2,671.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Wrobleski, Kristin
TitleTRUSTEETRUSTEETRUSTEETRUSTEE 
Name of key/compensated personKRISTIN WROBLESKIKRISTIN WROBLESKIKRISTIN WROBLESKIKRISTIN WROBLESKI 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org1.001.001.001.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Purpose: mission, activities, & accomplishments
Mission or significant activitiesCHAPTER OF THE ALS ASSOCIATION (ALSA), A NATIONAL NOT-FOR-PROFIT ORGANIZATION. THE CHAPTER REPRESENTS ALSA INDIANA, PROVIDING SERVICES TO PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THEIR FAMILIES, PROVIDING EDUCATION AND INFORMATION TO THE PUBLIC ABOUT ALS, ADVOCATING, AND FUNDING RESEARCH RELATED TO ALS.MOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH.MOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH.MOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH. 
Program service expenses, total$521,937.00$533,438.00$453,272.00$445,658.00 
Programs, including revenue & expenses
EDUCATION, AWARENESS, AND ADVOCACY - COMMUNITY EDUCATION WORKING TO STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON STATE AND NATIONAL LEVEL. INSERVICE EDUCATION SESSIONS TO ASSIST HEALTHCARE WORKERS IN THE TREATMENT OF ALS PATIENTS. SESSIONS ARE ONE HOUR IN LENGTH, AND ARE APPROPRIATE FOR THE FOLLOWING AUDIENCES: REGISTERED NURSES, SOCIAL WORKERS, PHYSICAL AND OCCUPATIONAL THERAPISTS, DIETICIANS, SPEECH THERAPISTS, MENTAL HEALTH WORKERS, HOME HEALTH AIDES, CERTIFIED NURSING ASSISTANTS, CORPORATIONS, AND VOLUNTEERS.
Program expenses$72,795.00    
Program descriptionEDUCATION, AWARENESS, AND ADVOCACY - COMMUNITY EDUCATION WORKING TO STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON STATE AND NATIONAL LEVEL. INSERVICE EDUCATION SESSIONS TO ASSIST HEALTHCARE WORKERS IN THE TREATMENT OF ALS PATIENTS. SESSIONS ARE ONE HOUR IN LENGTH, AND ARE APPROPRIATE FOR THE FOLLOWING AUDIENCES: REGISTERED NURSES, SOCIAL WORKERS, PHYSICAL AND OCCUPATIONAL THERAPISTS, DIETICIANS, SPEECH THERAPISTS, MENTAL HEALTH WORKERS, HOME HEALTH AIDES, CERTIFIED NURSING ASSISTANTS, CORPORATIONS, AND VOLUNTEERS.    
PATIENT AND CAREGIVER SERVICES - THE INDIANA CHAPTER'S PATIENT SERVICES INCLUDES SUPPORT GROUPS, NUTRITION ASSISTANCE, LENDING OF MEDICAL EQUIPMENT AND SUPPLIES, AND PROVIDING MULTI-DISCIPLINARY CLINICS.SUPPORT GROUPS PROVIDE SOCIAL AND EMOTIONAL SUPPORT AS WELL AS INFORMATION ABOUT MANAGING THE DISEASE TO PATIENTS AND THEIR FAMILIES. THE CHAPTER HAS OPERATED SEVERAL SUPPORT GROUPS IN THE PAST. THE GROUPS ARE GEOGRAPHICALLY-BASED AND MEET MONTHLY. THE GROUPS ARE ATTENDED BY THOSE IMPACTED IN SOME WAY BY ALS AND ALL ARE WELCOME TO ATTEND. THERE IS A SPEAKER PROVIDING TECHNICAL EXPERTISE OF SOME KIND AT SOME OF THE GROUP MEETINGS AND AT OTHERS GROUP MEMBERS SHARE THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. ON AN AVERAGE MONTHLY ATTENDANCE IS 80 PATIENTS AND CAREGIVERS STATEWIDE.THE INDIANA CHAPTER ACCEPTS DONATIONS OF MEDICAL EQUIPMENT AND SUPPLIES THAT THEY MAKE AVAILABLE TO ALS PATIENTS AT NO CHARGE THROUGH A LOAN CLOSET.MULTI-DISCIPLINARY CLINICS EXIST TO HELP PEOPLE WITH ALS GET THE BEST POSSIBLE CARE FOR THEIR CONDITION BY PROVIDING A MULTITUDE OF SERVICES AND A BROAD RANGE OF EXPERTISE IN A SINGLE LOCATION. THE ALSA-CERTIFIED CENTER OF EXCELLENCE, ALS MULTI-DISCIPLINARY CLINIC, SCHEDULES PATIENTS EVERY TUESDAY AND THE LAST THURSDAY OF EACH MONTH IN THE I.U. NEUROSCIENCE CENTER. WHILE THERE, PATIENTS SEE THEIR NEUROLOGIST, PHYSICAL THERAPIST, SPEECH THERAPIST, RESPIRATORY THERAPIST, NUTRITIONIST, CLINICAL TRIALS NURSE, SOCIALWORKER/CASE MANAGER, AND, IF APPROPRIATE, A HOSPICE REPRESENTATIVE. AFTER PATIENT VISITS ARE OVER THE TEAM DEBRIEFS ON EACH PATIENT'S ISSUES AND CONCERNS. SIX TO EIGHT PATIENTS ARE SEEN DURING THE AVERAGE CLINIC DAY AND MORE THAN 300 PATIENT VISITS TO THE CLINIC WERE SCHEDULED IN THE PAST YEAR. WHILE SOME OF THOSE VISITS MAY BE REPEAT VISITS BY THE SAME PATIENT WITHIN THE SAME YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIALS, STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM. THE TEAM ALSO ATTENDS THE VA HOSPITAL ALS CLINIC.OTHER PROGRAMS INCLUDE CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. A VARIETY OF OTHER MISCELLANEOUS PROGRAMS ARE OFFERED AS NEEDED FROM TIME TO TIME.
Program expenses $334,438.00$383,118.00$288,189.00 
Program description PATIENT AND CAREGIVER SERVICES - THE INDIANA CHAPTER'S PATIENT SERVICES INCLUDES SUPPORT GROUPS, NUTRITION ASSISTANCE, LENDING OF MEDICAL EQUIPMENT AND SUPPLIES, AND PROVIDING MULTI-DISCIPLINARY CLINICS.SUPPORT GROUPS PROVIDE SOCIAL AND EMOTIONAL SUPPORT AS WELL AS INFORMATION ABOUT MANAGING THE DISEASE TO PATIENTS AND THEIR FAMILIES. THE CHAPTER HAS OPERATED SEVERAL SUPPORT GROUPS IN THE PAST. THE GROUPS ARE GEOGRAPHICALLY-BASED AND MEET MONTHLY. THE GROUPS ARE ATTENDED BY THOSE IMPACTED IN SOME WAY BY ALS AND ALL ARE WELCOME TO ATTEND. THERE IS A SPEAKER PROVIDING TECHNICAL EXPERTISE OF SOME KIND AT SOME OF THE GROUP MEETINGS AND AT OTHERS GROUP MEMBERS SHARE THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. ON AN AVERAGE MONTHLY ATTENDANCE IS 80 PATIENTS AND CAREGIVERS STATEWIDE.THE INDIANA CHAPTER ACCEPTS DONATIONS OF MEDICAL EQUIPMENT AND SUPPLIES THAT THEY MAKE AVAILABLE TO ALS PATIENTS AT NO CHARGE THROUGH A LOAN CLOSET.MULTI-DISCIPLINARY CLINICS EXIST TO HELP PEOPLE WITH ALS GET THE BEST POSSIBLE CARE FOR THEIR CONDITION BY PROVIDING A MULTITUDE OF SERVICES AND A BROAD RANGE OF EXPERTISE IN A SINGLE LOCATION. THE ALSA-CERTIFIED CENTER OF EXCELLENCE, ALS MULTI-DISCIPLINARY CLINIC, SCHEDULES PATIENTS EVERY TUESDAY AND THE LAST THURSDAY OF EACH MONTH IN THE I.U. NEUROSCIENCE CENTER. WHILE THERE, PATIENTS SEE THEIR NEUROLOGIST, PHYSICAL THERAPIST, SPEECH THERAPIST, RESPIRATORY THERAPIST, NUTRITIONIST, CLINICAL TRIALS NURSE, SOCIALWORKER/CASE MANAGER, AND, IF APPROPRIATE, A HOSPICE REPRESENTATIVE. AFTER PATIENT VISITS ARE OVER THE TEAM DEBRIEFS ON EACH PATIENT'S ISSUES AND CONCERNS. SIX TO EIGHT PATIENTS ARE SEEN DURING THE AVERAGE CLINIC DAY AND MORE THAN 300 PATIENT VISITS TO THE CLINIC WERE SCHEDULED IN THE PAST YEAR. WHILE SOME OF THOSE VISITS MAY BE REPEAT VISITS BY THE SAME PATIENT WITHIN THE SAME YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIALS, STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM. THE TEAM ALSO ATTENDS THE VA HOSPITAL ALS CLINIC.OTHER PROGRAMS INCLUDE CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. A VARIETY OF OTHER MISCELLANEOUS PROGRAMS ARE OFFERED AS NEEDED FROM TIME TO TIME.PATIENT AND CAREGIVER SERVICES - THE INDIANA CHAPTER'S PATIENT SERVICES INCLUDES SUPPORT GROUPS, NUTRITION ASSISTANCE, LENDING OF MEDICAL EQUIPMENT AND SUPPLIES, AND PROVIDING MULTI-DISCIPLINARY CLINICS.SUPPORT GROUPS PROVIDE SOCIAL AND EMOTIONAL SUPPORT AS WELL AS INFORMATION ABOUT MANAGING THE DISEASE TO PATIENTS AND THEIR FAMILIES. THE CHAPTER HAS OPERATED SEVERAL SUPPORT GROUPS IN THE PAST. THE GROUPS ARE GEOGRAPHICALLY-BASED AND MEET MONTHLY. THE GROUPS ARE ATTENDED BY THOSE IMPACTED IN SOME WAY BY ALS AND ALL ARE WELCOME TO ATTEND. THERE IS A SPEAKER PROVIDING TECHNICAL EXPERTISE OF SOME KIND AT SOME OF THE GROUP MEETINGS AND AT OTHERS GROUP MEMBERS SHARE THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. ON AN AVERAGE MONTHLY ATTENDANCE IS 80 PATIENTS AND CAREGIVERS STATEWIDE.THE INDIANA CHAPTER ACCEPTS DONATIONS OF MEDICAL EQUIPMENT AND SUPPLIES THAT THEY MAKE AVAILABLE TO ALS PATIENTS AT NO CHARGE THROUGH A LOAN CLOSET.MULTI-DISCIPLINARY CLINICS EXIST TO HELP PEOPLE WITH ALS GET THE BEST POSSIBLE CARE FOR THEIR CONDITION BY PROVIDING A MULTITUDE OF SERVICES AND A BROAD RANGE OF EXPERTISE IN A SINGLE LOCATION. THE ALSA-CERTIFIED CENTER OF EXCELLENCE, ALS MULTI-DISCIPLINARY CLINIC, SCHEDULES PATIENTS EVERY TUESDAY AND THE LAST THURSDAY OF EACH MONTH IN THE I.U. NEUROSCIENCE CENTER. WHILE THERE, PATIENTS SEE THEIR NEUROLOGIST, PHYSICAL THERAPIST, SPEECH THERAPIST, RESPIRATORY THERAPIST, NUTRITIONIST, CLINICAL TRIALS NURSE, SOCIALWORKER/CASE MANAGER, AND, IF APPROPRIATE, A HOSPICE REPRESENTATIVE. AFTER PATIENT VISITS ARE OVER THE TEAM DEBRIEFS ON EACH PATIENT'S ISSUES AND CONCERNS. SIX TO EIGHT PATIENTS ARE SEEN DURING THE AVERAGE CLINIC DAY AND MORE THAN 300 PATIENT VISITS TO THE CLINIC WERE SCHEDULED IN THE PAST YEAR. WHILE SOME OF THOSE VISITS MAY BE REPEAT VISITS BY THE SAME PATIENT WITHIN THE SAME YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIALS, STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM. THE TEAM ALSO ATTENDS THE VA HOSPITAL ALS CLINIC.OTHER PROGRAMS INCLUDE CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. A VARIETY OF OTHER MISCELLANEOUS PROGRAMS ARE OFFERED AS NEEDED FROM TIME TO TIME.PATIENT AND CAREGIVER SERVICES - THE INDIANA CHAPTER'S PATIENT SERVICES INCLUDES SUPPORT GROUPS, NUTRITION ASSISTANCE, LENDING OF MEDICAL EQUIPMENT AND SUPPLIES, AND PROVIDING MULTI-DISCIPLINARY CLINICS.SUPPORT GROUPS PROVIDE SOCIAL AND EMOTIONAL SUPPORT AS WELL AS INFORMATION ABOUT MANAGING THE DISEASE TO PATIENTS AND THEIR FAMILIES. THE CHAPTER HAS OPERATED SEVERAL SUPPORT GROUPS IN THE PAST. THE GROUPS ARE GEOGRAPHICALLY-BASED AND MEET MONTHLY. THE GROUPS ARE ATTENDED BY THOSE IMPACTED IN SOME WAY BY ALS AND ALL ARE WELCOME TO ATTEND. THERE IS A SPEAKER PROVIDING TECHNICAL EXPERTISE OF SOME KIND AT SOME OF THE GROUP MEETINGS AND AT OTHERS GROUP MEMBERS SHARE THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. ON AN AVERAGE MONTHLY ATTENDANCE IS 80 PATIENTS AND CAREGIVERS STATEWIDE.THE INDIANA CHAPTER ACCEPTS DONATIONS OF MEDICAL EQUIPMENT AND SUPPLIES THAT THEY MAKE AVAILABLE TO ALS PATIENTS AT NO CHARGE THROUGH A LOAN CLOSET.MULTI-DISCIPLINARY CLINICS EXIST TO HELP PEOPLE WITH ALS GET THE BEST POSSIBLE CARE FOR THEIR CONDITION BY PROVIDING A MULTITUDE OF SERVICES AND A BROAD RANGE OF EXPERTISE IN A SINGLE LOCATION. THE ALSA-CERTIFIED CENTER OF EXCELLENCE, ALS MULTI-DISCIPLINARY CLINIC, SCHEDULES PATIENTS EVERY TUESDAY AND THE LAST THURSDAY OF EACH MONTH IN THE REGENSTRIEF CENTER OF WISHARD HOSPITAL. WHILE THERE, PATIENTS SEE THEIR NEUROLOGIST, PHYSICAL THERAPIST, SPEECH THERAPIST, RESPIRATORY THERAPIST, NUTRITIONIST, CLINICAL TRIALS NURSE, SOCIALWORKER/CASE MANAGER, AND, IF APPROPRIATE, A HOSPICE REPRESENTATIVE. AFTER PATIENT VISITS ARE OVER THE TEAM DEBRIEFS ON EACH PATIENT'S ISSUES AND CONCERNS. SIX TO EIGHT PATIENTS ARE SEEN DURING THE AVERAGE CLINIC DAY AND MORE THAN 300 PATIENT VISITS TO THE CLINIC WERE SCHEDULED IN THE PAST YEAR. WHILE SOME OF THOSE VISITS MAY BE REPEAT VISITS BY THE SAME PATIENT WITHIN THE SAME YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIALS, STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM.OTHER PROGRAMS INCLUDE CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. A VARIETY OF OTHER MISCELLANEOUS PROGRAMS ARE OFFERED AS NEEDED FROM TIME TO TIME. 
PATIENT CARE SERVICES - CASE MANAGEMENT PROVIDES SERVICES TO APPROXIMATELY 300 INDIVIDUALS DIAGNOSED WITH ALS EACH YEAR IN INDIANA. SUPPORT SERVICES AND PROGRAMS ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP THE FAMILY NAVIGATE THROUGH THE HEALTHCARE SYSTEM AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE AND IMPROVE THE QUALITY OF LIFE FOR THE PATIENTS AND FAMILY MEMBERS. WE ASSESS PATIENT/FAMILY NEEDS, DEVISE INDIVIDUAL CARE PLANS THAT INCLUDE HOME VISITS, COUNSELING, END OF LIFE CARE PLANNING, GRIEF COUNSELING; WE HAVE COMMUNITY PARTNERSHIPS WITH ALS MULTIDISCIPLINARY TREATMENT CENTERS AT IU NEUROSCIENCE CENTER AND VA MEDICAL CENTER AND WORK COLLABORATIVELY WITH THEM AND DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING/MOBILITY PROVIDERS, HOSPICE, AND HOMECARE PROVIDERS TO ENSURE THE BEST POSSIBLE CARE.
Program expenses$322,078.00    
Program descriptionPATIENT CARE SERVICES - CASE MANAGEMENT PROVIDES SERVICES TO APPROXIMATELY 300 INDIVIDUALS DIAGNOSED WITH ALS EACH YEAR IN INDIANA. SUPPORT SERVICES AND PROGRAMS ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP THE FAMILY NAVIGATE THROUGH THE HEALTHCARE SYSTEM AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE AND IMPROVE THE QUALITY OF LIFE FOR THE PATIENTS AND FAMILY MEMBERS. WE ASSESS PATIENT/FAMILY NEEDS, DEVISE INDIVIDUAL CARE PLANS THAT INCLUDE HOME VISITS, COUNSELING, END OF LIFE CARE PLANNING, GRIEF COUNSELING; WE HAVE COMMUNITY PARTNERSHIPS WITH ALS MULTIDISCIPLINARY TREATMENT CENTERS AT IU NEUROSCIENCE CENTER AND VA MEDICAL CENTER AND WORK COLLABORATIVELY WITH THEM AND DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING/MOBILITY PROVIDERS, HOSPICE, AND HOMECARE PROVIDERS TO ENSURE THE BEST POSSIBLE CARE.    
PUBLIC AND PROFESSIONAL EDUCATION - THE ALS ASSOCIATION INDIANA CHAPTER RAISES FUNDS TO SUPPORT RESEARCH INTO CAUSES, TREATMENTS, AND A CURE FOR ALS. RESEARCH DOLLARS ARE USED TO UNDERSTAND THE DISEASE PROCESS OF ALS AND HOW AXON STRUCTURE AND DYNAMICS, CELL DEATH, COGNITIVE CHANGES, GLUTAMATES, INFLAMMATION, MITOCHONDRIA AND SOD 1 ARE INVOLVED. MONIES RAISED FUND CLINICAL TRIALS, THE INVESTIGATION AND LINKAGE OF POSSIBLE ENVIRONMENTAL FACTORS, TO BETTER UNDERSTAND THE GENETICS OF ALS AND TO CREATE LABORATORY MODELS OF ALS. THE CHAPTER ADVOCATES AND EDUCATES THE PUBLIC THROUGH NEWSLETTERS AND OUTREACH PROGRAMS.
Program expenses $92,661.00$62,135.00$55,148.00 
Program description PUBLIC AND PROFESSIONAL EDUCATION - THE ALS ASSOCIATION INDIANA CHAPTER RAISES FUNDS TO SUPPORT RESEARCH INTO CAUSES, TREATMENTS, AND A CURE FOR ALS. RESEARCH DOLLARS ARE USED TO UNDERSTAND THE DISEASE PROCESS OF ALS AND HOW AXON STRUCTURE AND DYNAMICS, CELL DEATH, COGNITIVE CHANGES, GLUTAMATES, INFLAMMATION, MITOCHONDRIA AND SOD 1 ARE INVOLVED. MONIES RAISED FUND CLINICAL TRIALS, THE INVESTIGATION AND LINKAGE OF POSSIBLE ENVIRONMENTAL FACTORS, TO BETTER UNDERSTAND THE GENETICS OF ALS AND TO CREATE LABORATORY MODELS OF ALS. THE CHAPTER ADVOCATES AND EDUCATES THE PUBLIC THROUGH NEWSLETTERS AND OUTREACH PROGRAMS.PUBLIC AND PROFESSIONAL EDUCATION - THE ALS ASSOCIATION INDIANA CHAPTER RAISES FUNDS TO SUPPORT RESEARCH INTO CAUSES, TREATMENTS, AND A CURE FOR ALS. RESEARCH DOLLARS ARE USED TO UNDERSTAND THE DISEASE PROCESS OF ALS AND HOW AXON STRUCTURE AND DYNAMICS, CELL DEATH, COGNITIVE CHANGES, GLUTAMATES, INFLAMMATION, MITOCHONDRIA AND SOD 1 ARE INVOLVED. MONIES RAISED FUND CLINICAL TRIALS, THE INVESTIGATION AND LINKAGE OF POSSIBLE ENVIRONMENTAL FACTORS, TO BETTER UNDERSTAND THE GENETICS OF ALS AND TO CREATE LABORATORY MODELS OF ALS. THE CHAPTER ADVOCATES AND EDUCATES THE PUBLIC THROUGH NEWSLETTERS AND OUTREACH PROGRAMS.PUBLIC AND PROFESSIONAL EDUCATION - THE ALS ASSOCIATION INDIANA CHAPTER RAISES FUNDS TO SUPPORT RESEARCH INTO CAUSES, TREATMENTS, AND A CURE FOR ALS. RESEARCH DOLLARS ARE USED TO UNDERSTAND THE DISEASE PROCESS OF ALS AND HOW AXON STRUCTURE AND DYNAMICS, CELL DEATH, COGNITIVE CHANGES, GLUTAMATES, INFLAMMATION, MITOCHONDRIA AND SOD 1 ARE INVOLVED. MONIES RAISED FUND CLINICAL TRIALS, THE INVESTIGATION AND LINKAGE OF POSSIBLE ENVIRONMENTAL FACTORS, TO BETTER UNDERSTAND THE GENETICS OF ALS AND TO CREATE LABORATORY MODELS OF ALS. THE CHAPTER ADVOCATES AND EDUCATES THE PUBLIC THROUGH NEWSLETTERS AND OUTREACH PROGRAMS. 
RESEARCH - THE INDIANA CHAPTER OF THE ALS ASSOCIATION'S EFFORTS ARE FOCUSED TOWARD A SINGLE VISION FOR THE FUTURE: A WORLD FREE FROM ALS. OUR CHAPTER DEDICATES FUNDS EACH YEAR DIRECTED TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING TREATMENTS AND A CURE. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMOUNG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN GLOBAL RESEARCH. AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS.
Program expenses$127,064.00$106,339.00 $102,321.00 
Program descriptionRESEARCH - THE INDIANA CHAPTER OF THE ALS ASSOCIATION'S EFFORTS ARE FOCUSED TOWARD A SINGLE VISION FOR THE FUTURE: A WORLD FREE FROM ALS. OUR CHAPTER DEDICATES FUNDS EACH YEAR DIRECTED TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING TREATMENTS AND A CURE. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMOUNG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN GLOBAL RESEARCH. AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS.REVENUE SHARE - AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS. REVENUE SHARE - AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS. 
REVENUE SHARE - AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS. DUE TO A GRANT FROM THE NATIONAL ASSOCIATION, REVENUE SHARE WAS NOT PAID IN THE CURRENT YEAR. THE REMAINING PROGRAM EXPENSE REPRESENTS THE RESEARCH DISTRIBUTION TO THE NATIONAL ASSOCIATION.
Program expenses  $8,019.00  
Program description  REVENUE SHARE - AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS. DUE TO A GRANT FROM THE NATIONAL ASSOCIATION, REVENUE SHARE WAS NOT PAID IN THE CURRENT YEAR. THE REMAINING PROGRAM EXPENSE REPRESENTS THE RESEARCH DISTRIBUTION TO THE NATIONAL ASSOCIATION.  
Financial data
Revenue
Total revenue$733,750.00$727,113.00$1,114,617.00$720,530.00 
Revenue from contributions (total)$770,102.00$779,678.00$1,172,908.00$772,102.00$663,849.00
Revenue from noncash contributions$16,655.00$11,635.00$12,090.00$57,324.00 
Investment income, current yr$15,494.00$11,587.00$12,034.00$10,035.00 
Total revenue from grants, etc., current yr$770,102.00$779,678.00$1,172,908.00$772,102.00 
Total unrelated business revenue$0.00$0.00$0.00$0.00 
Other revenue, current yr-$51,846.00-$64,152.00-$70,325.00-$61,607.00 
Net unrelated business taxable revenue$0.00$0.00$0.00$0.00 
Program service revenue (total) $0.00$0.00$0.00$0.00
Gross receipts$1,120,294.00$1,087,562.00$1,244,961.00$902,037.00 
Sources of contributions
Revenue from fundraising events$545,428.00$580,873.00$780,771.00$574,794.00 
Revenue from all other contributions$224,674.00$198,805.00$392,137.00$197,308.00 
Other types of revenue
Miscellaneous revenue (total) $578.00$490.00$2,783.00 
Income from dividends, interest, and similar investments$23,930.00$25,322.00$13,136.00$5,394.00 
Net rental income $0.00$0.00$0.00$0.00
Net income from fundraising events-$51,846.00-$64,730.00-$70,815.00-$64,390.00 
Expense categories (totals)
Total functional expenses: sum of all$669,199.00$696,628.00$617,189.00$599,938.00 
Total functional expenses: program service $521,937.00$533,438.00$453,272.00$445,658.00 
Total functional expenses: management and general$58,628.00$59,104.00$56,426.00$44,472.00 
Total functional expenses: fundraising$88,634.00$104,086.00$107,491.00$109,808.00 
Fees for services
Legal fees (total)$14.00$1,332.00$500.00  
Fundraising service fees (total)$0.00$0.00$0.00$0.00 
Investment management fees (total)$247.00$4,469.00$1,906.00$1,179.00 
Assets and liabilities
Total assets$1,078,246.00$1,000,696.00$968,007.00$489,821.00$389,031.00
Total assets, beginning of year$1,000,696.00$968,007.00$489,821.00$389,031.00 
Total liabilities$25,675.00$22,349.00$5,394.00$18,982.00$37,561.00
Total liabilities, beginning of year$22,349.00$5,394.00$18,982.00$37,561.00 
Unrestricted net assets, end of yr$1,052,571.00$942,388.00$937,732.00$457,284.00 
Temporarily restricted net assets$0.00$35,959.00$24,881.00$13,555.00 
Net assets$1,052,571.00$978,347.00$962,613.00$470,839.00 
Net assets, beginning of year$978,347.00$962,613.00$470,839.00$351,470.00 
Other liabilities$23,350.00$7,128.00$4,681.00$5,576.00 
Other assets$13,842.00$19,702.00$36,608.00$94,408.00 
Investments: other securities$539,280.00$503,058.00$335,357.00  
Investments: publicly traded securities$28,388.00$36,056.00$84,885.00$124,952.00 
Cash: non-interest bearing$133,851.00$98,087.00$192,886.00$116,502.00 
Cash: non-interest bearing, beginning of year$98,087.00$192,886.00$116,502.00$118,063.00 
Inventories for sale or use$1,995.00$1,674.00$813.00$1,727.00 
Other financial variables
Revenue less expenses$64,551.00$30,485.00$497,428.00$120,592.00 
Advertising (total)$50,480.00$75,067.00$44,932.00$31,429.00 
Savings & temp cash investment$315,485.00$308,869.00$245,840.00$133,992.00 
Accounts receivable, net$23,638.00$11,958.00$61,998.00$6,743.00 
Prepaid expenses & deferred charges$538.00$3,448.00$626.00$580.00 
Accounts payable & accrued expenses$2,325.00$15,221.00$713.00$13,406.00 
Total net assets or fund balances$1,052,571.00$978,347.00$962,613.00$470,839.00 
Depreciation, depletion, amortization$9,665.00$5,644.00$3,059.00$3,758.00 
Payment to affiliates$66,614.00$106,177.00 $91,771.00 
Governance and accountability
Number of voting members13151413 
Number of independent voting members13151413 
Financial sheets auditedTrueTrueTrueTrue 
Accrual accountingTrueTrueTrueTrue 
Tax year start date2016-02-012015-02-012014-02-012013-02-01 
Tax year end date2017-01-012016-01-012015-01-012014-01-012013-01-01
Indicators for schedules (selected)
LobbiedTrueTrueTrue  
Grants to domestic org/gov't >$5kTrueTrueTrueTrue 
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990990990990 
Reason for form submission
Address change True   
Date e-filing submitted2017-10-182016-12-052015-07-072014-10-22 
IRS schema version2016v3.02015v2.12014v5.02013v3.0 
Filing identifier201712159349301101201612119349300131201541629349300214201431639349300123 
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