CYSTIC FIBROSIS ASSOCIATION OF ND

Address
921 S 9TH ST SUITE 115
BISMARCK, ND 58504
Contact
Website: http://www.cfanorthdakota.com
Phone: +1 (701) 222-3998
Nonprofit
NTEE: G20 - Birth Defects and Genetic Diseases
EIN: 45-0355886

Mission

THE MISSION OF CFA IS TO PROVIDE EDUCATION, RELIEF FROM SUFFERING, AID AND SUPPORT TO PERSONS SUFFERING FROM CYSTIC FIBROSIS AND THOSE PERSONS INCURRING EXTRAORDINARY MEDICAL EXPENSES NOT COMPENSATED BY INSURANCE. IN SUPPORT OF THIS MISSION, CFA IS DEDICATED TO HELPING TO IMPROVE AND EXTEND THE LIVES OF NORTH DAKOTANS WITH CYSTIC FIBROSIS SO THEY MAY ENJOY THE BENEFITS OF PROMISING RESEARCH, GIVING THEM THE OPPORTUNITY TO FULLY PARTICIPATE AS CONTRIBUTING MEMBERS TO NORTH DAKOTA'S ECONOMY AND SOCIETY.
 20172016201520142013
Basic features of the organization
Year of formation1980
Subsection code03
PF filing required0    
Metropolitan statistical area1010
Form of organization
AssociationTrue
Human resources, including compensation
Summary compensation info
Total compensation of current key personnel$90,000.00$86,944.00$84,366.00$79,797.00$79,516.00
Sum of reportable (W2/1099) compensation$88,661.00$85,238.00$82,764.00$80,506.00$78,369.00
Number of employees4437494043
Number of people compensated >$100k00000
Number of volunteers175175175175175
Number of highly compensated contractors0000 
Personnel
Backlund, David
TitleDirectorDirectorDirectorDirectorDirector
Name of key/compensated personDAVID BACKLUNDDAVID BACKLUNDDAVID BACKLUNDDAVID BACKLUNDDAVID BACKLUND
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Buchanan, Cindy
TitleDirectorDirectorDirectorDirectorDirector
Name of key/compensated personCINDY BUCHANANCINDY BUCHANANCINDY BUCHANANCINDY BUCHANANCINDY BUCHANAN
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Cossette, Karen
TitleSECR/TREASSECR/TREASSECR/TREASSECR/TREASSECR/TREAS
Name of key/compensated personKAREN COSSETTEKAREN COSSETTEKAREN COSSETTEKAREN COSSETTEKAREN COSSETTE
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Deis, Ardella
TitleDirectorDirectorDirectorDirectorDirector
Name of key/compensated personARDELLA DEISARDELLA DEISARDELLA DEISARDELLA DEISARDELLA DEIS
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Gross, Jeff
TitlePresidentPresidentPresidentPresidentPresident
Name of key/compensated personJEFF GROSSJEFF GROSSJEFF GROSSJEFF GROSSJEFF GROSS
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Karls, Kenneth
TitleExecutive DirecExecutive DirecExecutive DirecExecutive DirecExecutive Direc
Name of key/compensated personKENNETH KARLSKENNETH KARLSKENNETH KARLSKENNETH KARLSKENNETH KARLS
Position of compensated person
Average hours per week working for org40.0040.0040.0040.0040.00
Reportable compensation from org$88,661.00$85,238.00$82,764.00$80,506.00$78,369.00
Other comp, non-reportable, from org and related orgs$932.00$920.00$900.00$281.00$660.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Kramer, Chad
TitleDirectorDirector  Director
Name of key/compensated personCHAD KRAMERCHAD KRAMER  CHAD KRAMER
Position of compensated person
Current individual trustee or directorTrueTrue  True
Average hours per week working for org1.001.00  1.00
Reportable compensation from org$0.00$0.00  $0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00  $0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00  $0.00
Average hours per week working for related orgs0.000.00  0.00
Mills, Lynn
Title  Vice PresidentVice PresidentVice President
Name of key/compensated person  LYNN MILLSLYNN MILLSLYNN MILLS
Position of compensated person
Current individual trustee or director  TrueTrueTrue
Average hours per week working for org  1.001.001.00
Reportable compensation from org  $0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs  $0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs   $0.00$0.00$0.00
Average hours per week working for related orgs  0.000.000.00
Rothschiller, Gail
TitleVice PresidentVice PresidentDirectorDirectorDirector
Name of key/compensated personGAIL ROTHSCHILLERGAIL ROTHSCHILLERGAIL ROTHSCHILLERGAIL ROTHSCHILLERGAIL ROTHSCHILLER
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Rumple, Kathy
TitleDirectorDirectorDirectorDirectorDirector
Name of key/compensated personKATHY RUMPLEKATHY RUMPLEKATHY RUMPLEKATHY RUMPLEKATHY RUMPLE
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrueTrue
Average hours per week working for org1.001.001.001.001.00
Reportable compensation from org$0.00$0.00$0.00$0.00$0.00
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00$0.00
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00$0.00
Average hours per week working for related orgs0.000.000.000.000.00
Zimmerman, Michael
TitleDirectorDirectorDirectorDirector 
Name of key/compensated personMICHAEL ZIMMERMANMICHAEL ZIMMERMANMICHAEL ZIMMERMANMICHAEL ZIMMERMAN 
Position of compensated person
Current individual trustee or directorTrueTrueTrueTrue 
Average hours per week working for org1.001.001.001.00 
Reportable compensation from org$0.00$0.00$0.00$0.00 
Other comp, non-reportable, from org and related orgs$0.00$0.00$0.00$0.00 
Corresponding comp from related orgs
Reportable compensation from related orgs $0.00$0.00$0.00$0.00 
Average hours per week working for related orgs0.000.000.000.00 
Purpose: mission, activities, & accomplishments
Mission or significant activitiesTHE MISSION OF CFA IS TO PROVIDE EDUCATION, RELIEF FROM SUFFERING, AID AND SUPPORT TO PERSONS SUFFERING FROM CYSTIC FIBROSIS AND THOSE PERSONS INCURRING EXTRAORDINARY MEDICAL EXPENSES NOT COMPENSATED BY INSURANCE. IN SUPPORT OF THIS MISSION, CFA IS DEDICATED TO HELPING TO IMPROVE AND EXTEND THE LIVES OF NORTH DAKOTANS WITH CYSTIC FIBROSIS SO THEY MAY ENJOY THE BENEFITS OF PROMISING RESEARCH, GIVING THEM THE OPPORTUNITY TO FULLY PARTICIPATE AS CONTRIBUTING MEMBERS TO NORTH DAKOTA'S ECONOMY AND SOCIETY.THE MISSION OF CFA IS TO PROVIDE EDUCATION, RELIEF FROM SUFFERING, AID AND SUPPORT TO PERSONS SUFFERING FROM CYSTIC FIBROSIS AND THOSE PERSONS INCURRING EXTRAORDINARY MEDICAL EXPENSES NOT COMPENSATED BY INSURANCE. IN SUPPORT OF THIS MISSION, CFA IS DEDICATED TO HELPING TO IMPROVE AND EXTEND THE LIVES OF NORTH DAKOTANS WITH CYSTIC FIBROSIS SO THEY MAY ENJOY THE BENEFITS OF PROMISING RESEARCH, GIVING THEM THE OPPORTUNITY TO FULLY PARTICIPATE AS CONTRIBUTING MEMBERS TO NORTH DAKOTA'S ECONOMY AND SOCIETY.THE MISSION OF CFA IS TO PROVIDE EDUCATION, RELIEF FROM SUFFERING, AID AND SUPPORT TO PERSONS SUFFERING FROM CYSTIC FIBROSIS AND THOSE PERSONS INCURRING EXTRAORDINARY MEDICAL EXPENSES NOT COMPENSATED BY INSURANCE. IN SUPPORT OF THIS MISSION, CFA IS DEDICATED TO HELPING TO IMPROVE AND EXTEND THE LIVES OF NORTH DAKOTANS WITH CYSTIC FIBROSIS SO THEY MAY ENJOY THE BENEFITS OF PROMISING RESEARCH, GIVING THEM THE OPPORTUNITY TO FULLY PARTICIPATE AS CONTRIBUTING MEMBERS TO NORTH DAKOTA'S ECONOMY AND SOCIETY.THE MISSION OF CFA IS TO PROVIDE EDUCATION, RELIEF FROM SUFFERING, AID AND SUPPORT TO PERSONS SUFFERING FROM CYSTIC FIBROSIS AND THOSE PERSONS INCURRING EXTRAORDINARY MEDICAL EXPENSES NOT COMPENSATED BY INSURANCE. IN SUPPORT OF THIS MISSION, CFA IS DEDICATED TO HELPING TO IMPROVE AND EXTEND THE LIVES OF NORTH DAKOTANS WITH CYSTIC FIBROSIS SO THEY MAY ENJOY THE BENEFITS OF PROMISING RESEARCH, GIVING THEM THE OPPORTUNITY TO FULLY PARTICIPATE AS CONTRIBUTING MEMBERS TO NORTH DAKOTA'S ECONOMY AND SOCIETY.THE MISSION OF CFA IS TO PROVIDE EDUCATION, RELIEF FROM SUFFERING, AID AND SUPPORT TO PERSONS SUFFERING FROM CYSTIC FIBROSIS AND THOSE PERSONS INCURRING EXTRAORDINARY MEDICAL EXPENSES NOT COMPENSATED BY INSURANCE. IN SUPPORT OF THIS MISSION, CFA IS DEDICATED TO HELPING TO IMPROVE AND EXTEND THE LIVES OF NORTH DAKOTANS WITH CYSTIC FIBROSIS SO THEY MAY ENJOY THE BENEFITS OF PROMISING RESEARCH, GIVING THEM THE OPPORTUNITY TO FULLY PARTICIPATE AS CONTRIBUTING MEMBERS TO NORTH DAKOTA'S ECONOMY AND SOCIETY.
Program service expenses, total$336,246.00$302,317.00$270,137.00$270,206.00$272,619.00
Programs, including revenue & expenses
CFA PROVIDES ASSISTANCE FOR MEDICATIONS AND THERAPEUTIC EQUIPMENT, COLLEGE SCHOLARSHIPS FOR PERSONS WITH CYSTIC FIBROSIS, FINANCIAL ASSISTANCE FOR TRAVEL ASSOCIATED WITH MEDICAL TREATMENTS, SUPPORT GROUP MEETINGS FOR EDUCATIONAL AND EMOTIONAL SUPPORT, FINANCIAL ASSISTANCE FOR PERSONS UNDERGOING LUNG TRANSPLANTS, ACCESS TO CF CONFERENCES AND PUBLIC EDUCATION. CLIENTS SERVED - 95.
Program expenses$323,984.00$287,736.00$256,062.00$257,630.00$259,863.00
Grants and allocations made$112,760.00$84,074.00$78,089.00$84,926.00$103,259.00
Program descriptionCFA PROVIDES ASSISTANCE FOR MEDICATIONS AND THERAPEUTIC EQUIPMENT, COLLEGE SCHOLARSHIPS FOR PERSONS WITH CYSTIC FIBROSIS, FINANCIAL ASSISTANCE FOR TRAVEL ASSOCIATED WITH MEDICAL TREATMENTS, SUPPORT GROUP MEETINGS FOR EDUCATIONAL AND EMOTIONAL SUPPORT, FINANCIAL ASSISTANCE FOR PERSONS UNDERGOING LUNG TRANSPLANTS, ACCESS TO CF CONFERENCES AND PUBLIC EDUCATION. CLIENTS SERVED - 95.CFA PROVIDES ASSISTANCE FOR MEDICATIONS AND THERAPEUTIC EQUIPMENT, COLLEGE SCHOLARSHIPS FOR PERSONS WITH CYSTIC FIBROSIS, SUPPORT GROUP MEETINGS FOR EDUCATIONAL AND EMOTIONAL SUPPORT, FINANCIAL ASSISTANCE FOR PERSONS UNDERGOING LUNG TRANSPLANTS, ACCESS TO CF CONFERENCES AND PUBLIC EDUCATION. CLIENTS SERVED - 95.CFA PROVIDES ASSISTANCE FOR MEDICATIONS AND THERAPEUTIC EQUIPMENT, COLLEGE SCHOLARSHIPS FOR PERSONS WITH CYSTIC FIBROSIS, SUPPORT GROUP MEETINGS FOR EDUCATIONAL AND EMOTIONAL SUPPORT, FINANCIAL ASSISTANCE FOR PERSONS UNDERGOING LUNG TRANSPLANTS, ACCESS TO CF CONFERENCES AND PUBLIC EDUCATION. CLIENTS SERVED - 95.CFA PROVIDES ASSISTANCE FOR MEDICATIONS AND THERAPEUTIC EQUIPMENT, COLLEGE SCHOLARSHIPS FOR PERSONS WITH CYSTIC FIBROSIS, SUPPORT GROUP MEETINGS FOR EDUCATIONAL AND EMOTIONAL SUPPORT, FINANCIAL ASSISTANCE FOR PERSONS UNDERGOING LUNG TRANSPLANTS, ACCESS TO CF CONFERENCES AND PUBLIC EDUCATION. CLIENTS SERVED - 95.CFA PROVIDES ASSISTANCE FOR MEDICATIONS AND THERAPEUTIC EQUIPMENT, COLLEGE SCHOLARSHIPS FOR PERSONS WITH CYSTIC FIBROSIS, SUPPORT GROUP MEETINGS FOR EDUCATIONAL AND EMOTIONAL SUPPORT, FINANCIAL ASSISTANCE FOR PERSONS UNDERGOING LUNG TRANSPLANTS, ACCESS TO CF CONFERENCES AND PUBLIC EDUCATION. CLIENTS SERVED - 95.
FRESH AIR NEWSLETTER - 6 ISSUES PER YEAR TO OVER 3,800 RECIPIENTS.
Program expenses$12,262.00$14,581.00$14,075.00$12,576.00$12,756.00
Program descriptionFRESH AIR NEWSLETTER - 6 ISSUES PER YEAR TO OVER 3,800 RECIPIENTS.FRESH AIR NEWSLETTER - 6 ISSUES PER YEAR TO OVER 5,500 RECIPIENTS.FRESH AIR NEWSLETTER - 6 ISSUES PER YEAR TO OVER 5,500 RECIPIENTS.FRESH AIR NEWSLETTER - 6 ISSUES PER YEAR TO OVER 5,500 RECIPIENTS.FRESH AIR NEWSLETTER - 6 ISSUES PER YEAR TO OVER 5,500 RECIPIENTS.
Financial data
Revenue
Total revenue$629,107.00$608,116.00$583,053.00$533,470.00$540,766.00
Revenue from contributions (total)$173,366.00$159,050.00$156,261.00$164,342.00$188,622.00
Investment income, current yr$27,311.00$28,056.00$49,884.00$24,648.00$19,874.00
Total revenue from grants, etc., current yr$173,366.00$159,050.00$156,261.00$164,342.00$188,622.00
Total unrelated business revenue$0.00$0.00$0.00$0.00$0.00
Other revenue, current yr$428,430.00$421,010.00$376,908.00$344,480.00$332,270.00
Program service revenue (total)$0.00$0.00$0.00$0.00$0.00
Gross receipts$5,076,087.00$5,084,559.00$4,444,318.00$4,281,387.00$4,286,052.00
Sources of contributions
Contributions revenue from membership dues$1,460.00$950.00$1,500.00$970.00$2,140.00
Revenue from all other contributions$171,906.00$158,100.00$154,761.00$163,372.00$186,482.00
Other types of revenue
Royalties (total)$0.00$0.00$0.00$0.00$0.00
Miscellaneous revenue (total)$0.00$650.00$0.00$0.00$0.00
Net revenue from gaming (total)$374,266.00$372,962.00$323,682.00$282,382.00$310,352.00
Income from dividends, interest, and similar investments$21,836.00$21,090.00$15,120.00$12,248.00$13,675.00
Net rental income$0.00$0.00$0.00$0.00$0.00
Net income from fundraising events$54,164.00$47,398.00$53,226.00$62,098.00$21,918.00
Net inventory sales (total)$0.00$0.00$0.00$0.00$0.00
Expense categories (totals)
Total functional expenses: sum of all$433,278.00$402,256.00$373,677.00$360,220.00$361,119.00
Total functional expenses: program service $336,246.00$302,317.00$270,137.00$270,206.00$272,619.00
Total functional expenses: management and general$54,467.00$57,048.00$56,618.00$49,679.00$48,514.00
Total functional expenses: fundraising$42,565.00$42,891.00$46,922.00$40,335.00$39,986.00
Fees for services
Lobbying fees (total)$0.00$0.00$0.00$0.00$0.00
Legal fees (total)$0.00$875.00$0.00$0.00$0.00
Fundraising service fees (total)$0.00$0.00$0.00$0.00$0.00
General management fees (total)$0.00$0.00$0.00$0.00$0.00
Investment management fees (total)$0.00$0.00$0.00$0.00$0.00
Assets and liabilities
Total assets$2,113,632.00$1,897,439.00$1,688,950.00$1,517,002.00$1,300,444.00
Total assets, beginning of year$1,897,439.00$1,688,950.00$1,517,002.00$1,300,444.00$1,114,021.00
Total liabilities$44,885.00$52,121.00$43,303.00$38,500.00$43,510.00
Total liabilities, beginning of year$52,121.00$43,303.00$38,500.00$43,510.00$66,189.00
Pledges & accounts receivable, net$0.00$0.00$0.00$0.00$0.00
Loans & receivables from key persons$0.00$0.00$0.00$0.00$0.00
Unrestricted net assets, end of yr$2,068,747.00$1,845,318.00$1,645,647.00$1,478,502.00$1,256,934.00
Net assets$2,068,747.00$1,845,318.00$1,645,647.00$1,478,502.00$1,256,934.00
Net assets, beginning of year$1,845,318.00$1,645,647.00$1,478,502.00$1,256,934.00$1,047,832.00
Other liabilities$16,164.00$21,417.00$13,758.00$12,946.00$13,916.00
Intangible assets$0.00$0.00$0.00$0.00$0.00
Other assets$606,205.00$404,803.00$377,865.00$277,795.00$226,531.00
Investments: other securities$0.00$0.00$0.00$0.00$0.00
Investments: publicly traded securities$501,469.00$465,365.00$463,403.00$481,675.00$404,024.00
Cash: non-interest bearing$61,600.00$60,850.00$43,350.00$47,850.00$42,350.00
Cash: non-interest bearing, beginning of year$60,850.00$43,350.00$47,850.00$42,350.00$38,850.00
Investments -- program-related$0.00$0.00$0.00$0.00$0.00
Inventories for sale or use$15,339.00$12,433.00$10,294.00$8,132.00$7,853.00
Other financial variables
Revenue less expenses$195,829.00$205,860.00$209,376.00$173,250.00$179,647.00
Advertising (total)$23,000.00$23,070.00$27,299.00$22,898.00$20,765.00
Savings & temp cash investment$905,395.00$921,586.00$769,345.00$693,626.00$608,645.00
Accounts receivable, net$112.00$112.00$112.00$0.00$0.00
Prepaid expenses & deferred charges$778.00$1,222.00$1,199.00$1,029.00$1,143.00
Accounts payable & accrued expenses$28,721.00$30,704.00$29,545.00$25,554.00$29,594.00
Total net assets or fund balances$2,068,747.00$1,845,318.00$1,645,647.00$1,478,502.00$1,256,934.00
Depreciation, depletion, amortization$616.00$941.00$1,058.00$1,182.00$2,405.00
Payment to affiliates$0.00$0.00$0.00$0.00$0.00
Governance and accountability
Number of voting members99999
Number of independent voting members99999
Financial sheets auditedTrueTrueTrueTrueTrue
Accrual accountingTrueTrueTrueTrueTrue
Tax year start date2016-07-012015-07-012014-07-012013-07-012012-07-01
Tax year end date2017-06-012016-06-012015-06-012014-06-012013-06-01
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990990990990990
Date e-filing submitted2018-01-122017-03-312016-01-222014-11-192013-12-23
IRS schema version2016v3.02015v2.02014v5.02013v3.12012v2.0
Filing identifier201743329349300619201623199349308687201503219349300840201422959349300742201323129349300712
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