Li-Fraumeni Syndrome Association Inc

Address
PO Box 6458
Holliston, MA 01746
Contact
Website: http://www.lfsassociation.org
Phone: +1 (774) 266-0503
Nonprofit
NTEE: E86 - Patient Services - Entertainment, Recreation
EIN: 45-2284811

Primary exempt purpose

Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.
 201520142013
Basic features of the organization
Subsection code03
PF filing required0  
Metropolitan statistical area1123
Human resources, including compensation
Personnel
Berkeley, John
TitleTreasurer/Co-Founder  
Name of key/compensated personJohn Berkeley  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Faulkner, Susan
TitleVice President  
Name of key/compensated personSusan Faulkner  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Fraumeni, Holly
TitleChief Executive Assistant  
Name of key/compensated personHolly Fraumeni  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Kelleher, Patrick
TitleSecretary  
Name of key/compensated personPatrick Kelleher  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Lufkin, Robert
TitleMedical Advisor/Co-Founder  
Name of key/compensated personRobert Lufkin  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Newcomb, Charlie
TitleBoard of Director  
Name of key/compensated personCharlie Newcomb  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Perry, Jennifer
TitlePresident/Co-Founder  
Name of key/compensated personJennifer Perry  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Rosen, Dunyelle
TitleLegal Advisor  
Name of key/compensated personDunyelle Rosen  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Soprano, Debra
TitleMarketing Chair/Co-Founder  
Name of key/compensated personDebra Soprano  
Officer, director, trustee, or key employeeTrue  
Reportable compensation from org$0.00  
Purpose: mission, activities, & accomplishments
Primary exempt purposeLi-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.  
Program service expenses, total$21,490.00  
Financial data
Revenue
Total revenue$67,314.00  
Revenue from contributions (total)$54,857.00$156,553.00$40,663.00
Program service revenue (total)$0.00$0.00$0.00
Other types of revenue
Net rental income$0.00$0.00 
Assets and liabilities
Total assets$73,307.00$70,081.00$27,706.00
Total assets, beginning of year$70,081.00  
Total liabilities$0.00$0.00$0.00
Total liabilities, beginning of year$0.00  
Net assets$73,307.00  
Governance and accountability
Cash accountingTrue  
Tax year start date2015-01-01  
Tax year end date2015-12-012014-12-012013-12-01
Metadata about the filing
E-return type: 990, 990EZ, or 990PF990EZ  
Date e-filing submitted2016-09-29  
IRS schema version2015v2.1  
Filing identifier201601379349201080  
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